PD Community Blogs
We’ve searched the “blogosphere” for creative, informative and educational blogs that might be of interest to you.
Kate Kelsall: Shake, Rattle and Roll
Kate was diagnosed with Parkinson’s disease in the mid-1990s. In addition to being an activist for Parkinson research, she is a co-facilitator of a DBS support group in Denver.
Here’s a few more blogs that are worth checking out.
- Studio Foxhaven: Parkinson’s Journal
- About Parkinson’s Disease: Natural Healthy Concepts
- Shaky Paws Grampa
Voices from Parkinson's community
Date: May 02, 2017
The Parkinson Association of the Rockies has created a new segment on our bi-weekly enews called, "Ask the Parkinson's Expert". Every enews we ask the community to submit a question they may have for a Parkinson's doctor, a selected question will then be answered and featured on the next enews.
All questions are confidential. Not all questions can be answered, so please notify your physician for immediate attention.
Q: "Does marijuana have any benefits for those with Parkinson's?"
A: “While there is a lot of hype about marijuana and Parkinson's disease, the scientific evidence is much less conclusive. There have been a few survey-based studies and uncontrolled trials that suggest marijuana may be helpful for some Parkinson's symptoms including pain, anxiety, sleep, appetite, and nausea. These studies also suggest that marijuana may help smooth out certain motor symptoms, including dyskinesias. However, to date, all randomized controlled trials of marijuana for motor symptoms in Parkinson's have been negative but it is possible that they were not using the right dose or formulation of marijuana. In my experience, marijuana is more likely to be helpful for non-motor symptoms (e.g. Pain, sleep, appetite) than motor symptoms. Also of note, marijuana may cause side effects including problems with balance or memory so caution should be used with this, starting with a low dose and going up slowly, as with any medication. Cannabis is a complex plant that contains over 65 psychoactive chemicals, many of which actually decrease dopamine thus more research is needed. Dr. Maureen Leehey at the University of Colorado is currently conducting a study of cannabidiol (CBD) for Parkinson's tremor. Interested persons can email Nicole Leith."
- Benzi Kluger, MD, University of Colorado Hospital
Date: Jun 24, 2011
Is your brain less agile and your memory less reliable? Compared to last year, are you more easily confused and slower to process information? While these types of cognitive changes are common in individuals with Parkinson’s disease, they are also part of the normal aging process. A significant number of the elderly live with some memory deficiencies, collectively known as age-associated memory impairment.
Date: Jul 25, 2011
Outdoor activities in the summer can be wonderful. As usual when having a leisurely evening barbeque with family and friends, you are the designated grill master. As you are running in and out of the house to tend to the grill you notice it is not as easy as it was last summer. At times you lose your balance, stumble and even fall. However, you are determined not to lose your place as grill master. You are not going to let Parkinson's disease get in the way.
Date: Sep 19, 2011
I woke up Monday morning to a slight buzz throughout my body. “Today is the day!” I thought. I rode the BX bus from Boulder to Market Street Station, then took a quick 16th Street Shuttle ride, and walked a block or so to my destination. The buzz was still present as I walked through the door of the Colorado Ballet and read the note saying “Rhythm & Grace meets in Practice Room C.” I was 30 minutes early for the noon class. “Today is the day!” Wow!
Date: Oct 03, 2011
Many people with Parkinson's disease experience fatigue. They often say they feel tired, even exhausted. It can be just as disabling and unpleasant a symptom as the motor slowing or the trembling. Fatigue is typically experienced as a state of being tired, weary, exhausted and without energy. Some people say it feels like walking underwater. Everything is an effort and exhausting. You can have fatigue and no depression. Most people with fatigue are not not sad.
Date: Dec 07, 2011
Recent research shows that regular exercise can help people with PD stay more flexible, improve posture and make overall movement easier. Some studies even show that an exercise routine can slow or reverse some of the effects of the disease. Regardless of the disease, being fit and active makes everyone have more energy and improves overall health and well being. Everyday exercise, even if it is something simple, will help fight the effects of the disease and make you feel more in control of your condition. It’s recommended that a physical or occupational therapist design a fitness regimen specific to helping your needs, but here are some tips that everyone can use for everyday, at-home exercises:
- Streeeeetch- Stretching can be done several times during the day, even during the simplest of activities like while watching TV, riding in the car or when you wake up. Regular stretching increases range of motion of joints, helps with posture, protects with muscle strains, improves circulation and releases muscle tension.
- Strengthen- Strengthening exercises can help you stand up straighter, make certain everyday tasks easier and makes bones stronger. Visit here for 10 strength and balance exercises.
- Aerobic conditioning exercise- Examples of aerobic exercises include walking, swimming, biking or dancing. Regular aerobic exercise performed 3 or more times a week can strengthen your heart and lungs, reduce stress and help prevent other health conditions like diabetes.
Come to our next exercise class and get in your daily aerobic exercise! Visit here for more information.
*Referenced from the National Parkinson Foundation booklet, "Fitness Counts".
Date: Dec 12, 2011
This posting is a snippet of the Recently Diagnosed with PD blog, written by Betsy Vierck.
Almost three years ago I was also diagnosed with Parkinson's. Ginny and I became refuges for each other. We have been extremely tight, speaking in a language that non-PDers can never understand.
Date: Dec 30, 2011
At the beginning of the New Year many people make resolutions. A common theme is taking care of your health by watching your diet, quitting smoking, drinking less alcohol and starting an exercise program. Sound familiar? "Take care of your health". What does that mean? In the Parkinson's community it is important to include exercise in your daily routine.
Date: Jan 20, 2012
Here’s the scenario: You, your family member, friend or neighbor has Parkinson's Disease (PD). And, you wonder… “How will this disease affect me?” “Where should I turn for support?”
Where do you go to get information about PD? Do you search the internet, go to the library, the bookstore or ask a medical professional? Is ignorance bliss or is knowledge and education power?
Date: Feb 06, 2012
Walking - we take for granted such an automatic task. Put one foot in front of the other. You stroll along at a brisk pace without taking a second thought to it. That is, until you have been diagnosed with Parkinson's disease.
Date: Mar 15, 2012
*In this post are a few common ways to assist with writing, speaking, issues with freezing and taking medications. What has worked for you? Please respond on our blog with your favorite tips and tricks that help you get along each day with Parkinson’s.