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Young Onset Caregiving

Learn to navigate challenges together

Younger patients with Parkinson’s disease often have different issues than older patients. Often they are still working with a young family. If you are the partner it is natural to wonder how their diagnosis will affect your life. When one partner is diagnosed with PD, it deeply affects the other as well.

When you began your life as a couple, your dreams and expectations for that life did not include a chronic illness. Now you must consider how PD might change your relationship with each other and your already busy lives.

You and your partner are likely to experience a range of emotions as you navigate the unfamiliar terrain of PD. It is no surprise that the stress associated with the diagnosis and treatment of PD can take its toll on both of you. What is surprising is that many couples find that by joining forces and managing the situation together they are actually able to strengthen their relationship. One of the best ways to create or maintain a healthy relationship while managing PD is to identify when and how you need support. Keep in mind that the person with PD is not the only one who will need support; you both will. Talk openly and honestly. Talk with your partner about how PD is impacting your life together and how each of you can make life easier for the other. Share your fears and concerns including the potential for disability, unemployment, reduced income, and greater dependence on others.