Date: May 16, 2016
The 3rd Annual Colorado Community Conference on Saturday, May 7 at the Westin Westminster Conference Center was a huge success! Over 300 people braved the cold and rain to come together to support local research on Parkinson's disease. The conference, brought to you by the Parkinson Association of the Rockies, focused on research, medications and tips & tricks through seminars and panel discussions.
Conference also included a Clinical Research Resource Fair. This Fair provided an opportunity for conference participants to speak directly with clinicians and physicians who currently have open research trials as well as individuals who have participated in past and/or present clinical research trials.
Presentations will be uploaded as they come in from speakers.
Josefa Domingos, MS, PT, Campus Neurologico Senior Lisbon, Dual-Task Interventions
Monique Giroux, MD, Movement & Neuroperformance Center, Practical Tips
Adam Hebb, MD, Colorado Brain & Spine Institute, Current & Future Treatments
Peter Schmidt, PhD, National Parkinson Foundation, Exploring Tomorrow's Breakthroughs
People with PD can get better... and stay better longer with exercise!
That is the MOTTO of the Parkinson Wellness Recovery (PWR!) Project – a project sponsored by NeuroFit NetWorks (www.nfnw.org). The PWR! Project was started in October 2009 when Dr. Becky Farley, a researcher, LSVT® BIG inventor, physical therapist, neuroscientist, and Parkinson’s exercise specialist opened a model community-based neurofitness center for people with PD in Tucson, AZ…
Outdoor activities in the summer can be wonderful. As usual when having a leisurely evening barbeque with family and friends, you are the designated grill master. As you are running in and out of the house to tend to the grill you notice it is not as easy as it was last summer. At times you lose your balance, stumble and even fall. However, you are determined not to lose your place as grill master. You are not going to let Parkinson's disease get in the way.
I woke up Monday morning to a slight buzz throughout my body. “Today is the day!” I thought. I rode the BX bus from Boulder to Market Street Station, then took a quick 16th Street Shuttle ride, and walked a block or so to my destination. The buzz was still present as I walked through the door of the Colorado Ballet and read the note saying “Rhythm & Grace meets in Practice Room C.” I was 30 minutes early for the noon class. “Today is the day!” Wow!
This posting is a snippet of the Recently Diagnosed with PD blog, written by Betsy Vierck.
Almost three years ago I was also diagnosed with Parkinson's. Ginny and I became refuges for each other. We have been extremely tight, speaking in a language that non-PDers can never understand.
At the beginning of the New Year many people make resolutions. A common theme is taking care of your health by watching your diet, quitting smoking, drinking less alcohol and starting an exercise program. Sound familiar? "Take care of your health". What does that mean? In the Parkinson's community it is important to include exercise in your daily routine.
As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC). ...
April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can let the public be aware about Parkinson's Disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefront.
Care partners, care givers, care takers all mean the same thing. You experience life together. In good times and challenging times. In sickness and in health. Throw in the part about chronic illness. When one of you is diagnosed with Parkinson’s disease, you both live with it. Most care partners focus on the person with Parkinson's well-being before thinking of taking care of oneself.
Live in the moment
- Learn from the past, plan for tomorrow, but live for today.
- Don’t put off those activities that you have talked about doing “some day”.
- Make time for fun.
Be sure your doctor is a movement disorder specialist/neurologist (MDS).
Even if your doctor is a neurologist, this does not mean that he/she has the experience or education with movement disorders that will enable them to provide the specific care you need.