Date: Dec 10, 2014
Stories from Mindy, a daughter impacted by her father's disease, and Greg, an individual living with Parkinson's, on how they are utilizing life with Parkinson's as an occasion to rise to.
I'll never forget the day I found out my dad was diagnosed with Parkinson's disease. I couldn't believe it when my mom told us. It was almost an out of body experience; and I'm still amazed by how quickly it changed my perspective on things.
I first thought about his relationship with my children. Would he be around to watch them graduate? Will he feel healthy enough to coach their soccer teams? I then switched my thoughts to my mom and prayed for the strength to be her support system, even before she needs it.
Be sure your doctor is a movement disorder specialist/neurologist (MDS).
Even if your doctor is a neurologist, this does not mean that he/she has the experience or education with movement disorders that will enable them to provide the specific care you need.
Fall Prevention ...
Falls can be very frightening to individuals with Parkinson’s disease and their care partners. They generally are dramatic and symbolize a loss of control. One of our major goals as an organization is to educate individuals living with Parkinson’s disease on fall prevention and identify ways to prevent falls.
Do you ever get the feeling that you are working for your home? I am not talking about the many years you spend paying for your home. The question is how often do you find that your home makes every day life easier for you?
When the doctor first utters the words hospice or palliative care, many people freeze. No one wants to hear those words used in reference to their loved one. It’s scary and often families have no idea what this means. Instead of feeling relieved and empowered, families often feel anxious. Many people don’t actually know what palliative care is and how it can help a loved one achieve a better quality of life.