Date: May 14, 2014
The Cheyenne PD Support Group applied for and was awarded a PCORI grant to study 'Quality of Care for the Wyoming Parkinson's Community'.
At this point, we are really just doing research on feasible ideas on which to do research.
The whole reason for PCORI grants is to make sure that the ideas being researched are ideas that have been brought up by 'shareholders' of the PD community. Those shareholders being: the PD patients themselves, their caretakers and family, the medical personnel and tertiary medical personnel (such as physical therapists, massage therapists)
PLEASE! WE NEED YOUR IDEAS!
Please see the attached information on the PCORI research grant here.
Fall Prevention ...
Falls can be very frightening to individuals with Parkinson’s disease and their care partners. They generally are dramatic and symbolize a loss of control. One of our major goals as an organization is to educate individuals living with Parkinson’s disease on fall prevention and identify ways to prevent falls.
As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC). ...
*In this post are a few common ways to assist with writing, speaking, issues with freezing and taking medications. What has worked for you? Please respond on our blog with your favorite tips and tricks that help you get along each day with Parkinson’s.
Walking - we take for granted such an automatic task. Put one foot in front of the other. You stroll along at a brisk pace without taking a second thought to it. That is, until you have been diagnosed with Parkinson's disease.
At the beginning of the New Year many people make resolutions. A common theme is taking care of your health by watching your diet, quitting smoking, drinking less alcohol and starting an exercise program. Sound familiar? "Take care of your health". What does that mean? In the Parkinson's community it is important to include exercise in your daily routine.
Recent research shows that regular exercise can help people with PD stay more flexible, improve posture and make overall movement easier. Some studies even show that an exercise routine can slow or reverse some of the effects of the disease. Regardless of the disease, being fit and active makes everyone have more energy and improves overall health and well being. Everyday exercise, even if it is something simple, will help fight the effects of the disease and make you feel more in control of your condition. It’s recommended that a physical or occupational therapist design a fitness regimen specific to helping your needs, but here are some tips that everyone can use for everyday, at-home exercises:
- Streeeeetch- Stretching can be done several times during the day, even during the simplest of activities like while watching TV, riding in the car or when you wake up. Regular stretching increases range of motion of joints, helps with posture, protects with muscle strains, improves circulation and releases muscle tension.
- Strengthen- Strengthening exercises can help you stand up straighter, make certain everyday tasks easier and makes bones stronger. Visit here for 10 strength and balance exercises.
- Aerobic conditioning exercise- Examples of aerobic exercises include walking, swimming, biking or dancing. Regular aerobic exercise performed 3 or more times a week can strengthen your heart and lungs, reduce stress and help prevent other health conditions like diabetes.
Come to our next exercise class and get in your daily aerobic exercise! Visit here for more information.
*Referenced from the National Parkinson Foundation booklet, "Fitness Counts".
I woke up Monday morning to a slight buzz throughout my body. “Today is the day!” I thought. I rode the BX bus from Boulder to Market Street Station, then took a quick 16th Street Shuttle ride, and walked a block or so to my destination. The buzz was still present as I walked through the door of the Colorado Ballet and read the note saying “Rhythm & Grace meets in Practice Room C.” I was 30 minutes early for the noon class. “Today is the day!” Wow!
Outdoor activities in the summer can be wonderful. As usual when having a leisurely evening barbeque with family and friends, you are the designated grill master. As you are running in and out of the house to tend to the grill you notice it is not as easy as it was last summer. At times you lose your balance, stumble and even fall. However, you are determined not to lose your place as grill master. You are not going to let Parkinson's disease get in the way.
People with PD can get better... and stay better longer with exercise!
That is the MOTTO of the Parkinson Wellness Recovery (PWR!) Project – a project sponsored by NeuroFit NetWorks (www.nfnw.org). The PWR! Project was started in October 2009 when Dr. Becky Farley, a researcher, LSVT® BIG inventor, physical therapist, neuroscientist, and Parkinson’s exercise specialist opened a model community-based neurofitness center for people with PD in Tucson, AZ…
Spring time in the Rockies. What does that mean to you? One can use the analogy of Parkinson's and Spring. The weather is unpredictable in the Spring. There are beautiful days outside. Sometimes, storms which vary in severity. There can be an extreme range of temperatures and conditions. Sound familiar with your own case of Parkinson's. Each one of you may have different extremes on any given day of symptoms. Some days, you may feel like you can't go out because of your symptoms. Other days, nothing can stop you from exploring the outdoors.
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