April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can let the public be aware about Parkinson's Disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefront.
As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC).
My curiosity was peaked. Just three years prior, I thought I had skied for the last time. It was about this time when my brain started to fail in sending the proper signals to the right side of my body; leaving me at the middle of the mountain waiting to be driven to the bottom by the ski patrol. The pain of that moment was indelible.
I woke up Monday morning to a slight buzz throughout my body. “Today is the day!” I thought. I rode the BX bus from Boulder to Market Street Station, then took a quick 16th Street Shuttle ride, and walked a block or so to my destination. The buzz was still present as I walked through the door of the Colorado Ballet and read the note saying “Rhythm & Grace meets in Practice Room C.” I was 30 minutes early for the noon class. “Today is the day!” Wow!
People with PD can get better... and stay better longer with exercise!
That is the MOTTO of the Parkinson Wellness Recovery (PWR!) Project – a project sponsored by NeuroFit NetWorks (www.nfnw.org). The PWR! Project was started in October 2009 when Dr. Becky Farley, a researcher, LSVT® BIG inventor, physical therapist, neuroscientist, and Parkinson’s exercise specialist opened a model community-based neurofitness center for people with PD in Tucson, AZ (www.pwrgym.org). PWR! GYM Tucson offers early and continuous access to research-based exercise programs that target the motor/cognitive/emotional symptoms of Parkinson disease. Research suggests that early intervention and continuous access to exercise and enrichment will be essential to achieving disease modification. PWR! is about developing community neurofitness centers as integral healthcare components to achieving this goal.
PD Life can help you simplify and improve the accuracy of reporting to the doctor your compliance with the cumbersome regimen of Parkinson's medications.
While "on-the-go," PD Life simultaneously reminds you to take your Parkinson's and other medications and record how you are feeling in the moment. No longer do you have to recollect how you felt two months ago. Without a second thought, you are developing a personalized database of medications taken, side affects experienced, and disease symptoms present. You can easily share this data with your physician. More accurate information may significantly affect and improve your course of treatment for Parkinson's disease.