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PD Community Blogs

We’ve searched the “blogosphere” for creative, informative and educational blogs that might be of interest to you.

Kate Kelsall: Shake, Rattle and Roll
Kate was diagnosed with Parkinson’s disease in the mid-1990s. In addition to being an activist for Parkinson research, she is a co-facilitator of a DBS support group in Denver.

Here’s a few more blogs that are worth checking out.

Patient Blogs

Caregiver Blogs

National Parkinson Foundation: Caregivers on the Blog

Voices from Parkinson's community

Latest

Flanked by Angels

Date: Mar 19, 2012

Flanked by Angels

As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC). ...

Posted By: Administrator

1718 Comments

Share Your Story

Date: Apr 16, 2012

April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can let the public be aware about Parkinson's Disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefront.

Posted By: Administrator

2084 Comments

Plan "B" for the Care Partner

Date: May 01, 2012

Care partners, care givers, care takers all mean the same thing. You experience life together. In good times and challenging times. In sickness and in health. Throw in the part about chronic illness. When one of you is diagnosed with Parkinson’s disease, you both live with it. Most care partners focus on the person with Parkinson's well-being before thinking of taking care of oneself.

Posted By: Administrator

749 Comments

Mrs. Shaky Paws Top 10 Recommendations for Care Partners

Date: Jun 11, 2012

Live in the moment

  • Learn from the past, plan for tomorrow, but live for today.
  • Don’t put off those activities that you have talked about doing “some day”.
  • Make time for fun.

Posted By: Administrator

876 Comments

Mr. Shaky Paws Top 10 Recommendations for PWP's

Date: Jun 21, 2012

Be sure your doctor is a movement disorder specialist/neurologist (MDS).
Even if your doctor is a neurologist, this does not mean that he/she has the experience or education with movement disorders that will enable them to provide the specific care you need.

Posted By: Administrator

1353 Comments

Fall Prevention

Date: Oct 23, 2012

Fall Prevention ...

Falls can be very frightening to individuals with Parkinson’s disease and their care partners. They generally are dramatic and symbolize a loss of control. One of our major goals as an organization is to educate individuals living with Parkinson’s disease on fall prevention and identify ways to prevent falls.

Posted By: Administrator

3242 Comments

How Your Home can WORK for you?

Date: Jan 02, 2013

Do you ever get the feeling that you are working for your home? I am not talking about the many years you spend paying for your home. The question is how often do you find that your home makes every day life easier for you? 

Posted By: Administrator

7807 Comments

What is Palliative Care?

Date: Mar 28, 2013

When the doctor first utters the words hospice or palliative care, many people freeze. No one wants to hear those words used in reference to their loved one. It’s scary and often families have no idea what this means. Instead of feeling relieved and empowered, families often feel anxious. Many people don’t actually know what palliative care is and how it can help a loved one achieve a better quality of life.

Posted By: Administrator

2358 Comments
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