PD Community Blogs
We’ve searched the “blogosphere” for creative, informative and educational blogs that might be of interest to you.
Kate Kelsall: Shake, Rattle and Roll
Kate was diagnosed with Parkinson’s disease in the mid-1990s. In addition to being an activist for Parkinson research, she is a co-facilitator of a DBS support group in Denver.
Here’s a few more blogs that are worth checking out.
- Studio Foxhaven: Parkinson’s Journal
- About Parkinson’s Disease: Natural Healthy Concepts
- Shaky Paws Grampa
Voices from Parkinson's community
Date: Sep 15, 2016
Our 4th Annual e3 educate, empower, energize conference on Saturday, September 10 at the Hyatt Regency Aurora - Denver Conference Center was a home run!
Tim Hague Sr., winner of The Amazing Race Canada captivated us with his story of his triumphant win! He made us laugh and he sure did make us cry! Tim was the perfect way to kick off a day of empowerement as he left us knowing that we can "live our best lives".
Following Tim, we had a jam-packed day where we challenged participants to:
-educate themselves about nonmotor symptroms and learn techniquest ot overcome those symptoms
-energize themselves and express themselves through the use of movement and creativity
-empower themselves through reminders of how important self-talk and self-care are to their well-being
We can't thank our committee, our day-of volunteers and our community for helping make this one of our most successful events to date! Thank you!
Click on the presentation titles to download a copy of the presentations from the day.
NonMotor Symptoms, Samantha Holden, MD, University of Colorado Hospital
Treatment of NonMotor Symptoms, Mihaela Alexander, MD, Colorado Neurodiagnostics
Mindfulness, Benzi Kluger, MD, University of Colorado Hospital
Communication & Well-being, Cynthia McRae, PhD, University of Denver
Exercise for Parkinson's, Miriam Rafferty, PT, DPT, Phd, Northwestern University
From Disoder to Dancer (COMING SOON!), Sarah Leversee & Wayne Gilbert, Art as Action
Click HERE to view photos from the entire day!
Date: Oct 03, 2011
Many people with Parkinson's disease experience fatigue. They often say they feel tired, even exhausted. It can be just as disabling and unpleasant a symptom as the motor slowing or the trembling. Fatigue is typically experienced as a state of being tired, weary, exhausted and without energy. Some people say it feels like walking underwater. Everything is an effort and exhausting. You can have fatigue and no depression. Most people with fatigue are not not sad.
Date: Dec 07, 2011
Recent research shows that regular exercise can help people with PD stay more flexible, improve posture and make overall movement easier. Some studies even show that an exercise routine can slow or reverse some of the effects of the disease. Regardless of the disease, being fit and active makes everyone have more energy and improves overall health and well being. Everyday exercise, even if it is something simple, will help fight the effects of the disease and make you feel more in control of your condition. It’s recommended that a physical or occupational therapist design a fitness regimen specific to helping your needs, but here are some tips that everyone can use for everyday, at-home exercises:
- Streeeeetch- Stretching can be done several times during the day, even during the simplest of activities like while watching TV, riding in the car or when you wake up. Regular stretching increases range of motion of joints, helps with posture, protects with muscle strains, improves circulation and releases muscle tension.
- Strengthen- Strengthening exercises can help you stand up straighter, make certain everyday tasks easier and makes bones stronger. Visit here for 10 strength and balance exercises.
- Aerobic conditioning exercise- Examples of aerobic exercises include walking, swimming, biking or dancing. Regular aerobic exercise performed 3 or more times a week can strengthen your heart and lungs, reduce stress and help prevent other health conditions like diabetes.
Come to our next exercise class and get in your daily aerobic exercise! Visit here for more information.
*Referenced from the National Parkinson Foundation booklet, "Fitness Counts".
Date: Dec 12, 2011
This posting is a snippet of the Recently Diagnosed with PD blog, written by Betsy Vierck.
Almost three years ago I was also diagnosed with Parkinson's. Ginny and I became refuges for each other. We have been extremely tight, speaking in a language that non-PDers can never understand.
Date: Dec 30, 2011
At the beginning of the New Year many people make resolutions. A common theme is taking care of your health by watching your diet, quitting smoking, drinking less alcohol and starting an exercise program. Sound familiar? "Take care of your health". What does that mean? In the Parkinson's community it is important to include exercise in your daily routine.
Date: Jan 20, 2012
Here’s the scenario: You, your family member, friend or neighbor has Parkinson's Disease (PD). And, you wonder… “How will this disease affect me?” “Where should I turn for support?”
Where do you go to get information about PD? Do you search the internet, go to the library, the bookstore or ask a medical professional? Is ignorance bliss or is knowledge and education power?
Date: Feb 06, 2012
Walking - we take for granted such an automatic task. Put one foot in front of the other. You stroll along at a brisk pace without taking a second thought to it. That is, until you have been diagnosed with Parkinson's disease.
Date: Mar 15, 2012
*In this post are a few common ways to assist with writing, speaking, issues with freezing and taking medications. What has worked for you? Please respond on our blog with your favorite tips and tricks that help you get along each day with Parkinson’s.
Date: Mar 19, 2012
As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC). ...
Date: Apr 16, 2012
April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can let the public be aware about Parkinson's Disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefront.
Date: May 01, 2012
Care partners, care givers, care takers all mean the same thing. You experience life together. In good times and challenging times. In sickness and in health. Throw in the part about chronic illness. When one of you is diagnosed with Parkinson’s disease, you both live with it. Most care partners focus on the person with Parkinson's well-being before thinking of taking care of oneself.