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PD Community Blogs

We’ve searched the “blogosphere” for creative, informative and educational blogs that might be of interest to you.

Kate Kelsall: Shake, Rattle and Roll
Kate was diagnosed with Parkinson’s disease in the mid-1990s. In addition to being an activist for Parkinson research, she is a co-facilitator of a DBS support group in Denver.

Here’s a few more blogs that are worth checking out.

Patient Blogs

Caregiver Blogs

National Parkinson Foundation: Caregivers on the Blog

Voices from Parkinson's community

Latest

Parkinson's and Fatigue

Date: Oct 03, 2011

Many people with Parkinson's disease experience fatigue. They often say they feel tired, even exhausted. It can be just as disabling and unpleasant a symptom as the motor slowing or the trembling. Fatigue is typically experienced as a state of being tired, weary, exhausted and without energy. Some people say it feels like walking underwater. Everything is an effort and exhausting. You can have fatigue and no depression. Most people with fatigue are not not sad.

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3094 Comments

Why Fitness Counts

Date: Dec 07, 2011

Recent research shows that regular exercise can help people with PD stay more flexible, improve posture and make overall movement easier. Some studies even show that an exercise routine can slow or reverse some of the effects of the disease. Regardless of the disease, being fit and active makes everyone have more energy and improves overall health and well being. Everyday exercise, even if it is something simple, will help fight the effects of the disease and make you feel more in control of your condition. It’s recommended that a physical or occupational therapist design a fitness regimen specific to helping your needs, but here are some tips that everyone can use for everyday, at-home exercises:

  1. Streeeeetch- Stretching can be done several times during the day, even during the simplest of activities like while watching TV, riding in the car or when you wake up. Regular stretching increases range of motion of joints, helps with posture, protects with muscle strains, improves circulation and releases muscle tension.
  2. Strengthen- Strengthening exercises can help you stand up straighter, make certain everyday tasks easier and makes bones stronger. Visit here for 10 strength and balance exercises.
  3. Aerobic conditioning exercise- Examples of aerobic exercises include walking, swimming, biking or dancing. Regular aerobic exercise performed 3 or more times a week can strengthen your heart and lungs, reduce stress and help prevent other health conditions like diabetes.

Come to our next exercise class and get in your daily aerobic exercise! Visit here for more information.
*Referenced from the National Parkinson Foundation booklet, "Fitness Counts".

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19952 Comments

Ginny Fraser's Three Steps to Living Happily with PD

Date: Dec 12, 2011

This posting is a snippet of the Recently Diagnosed with PD blog, written by Betsy Vierck.

Almost three years ago I was also diagnosed with Parkinson's. Ginny and I became refuges for each other. We have been extremely tight, speaking in a language that non-PDers can never understand.

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709 Comments

Take Care of Your Health

Date: Dec 30, 2011

At the beginning of the New Year many people make resolutions. A common theme is taking care of your health by watching your diet, quitting smoking, drinking less alcohol and starting an exercise program. Sound familiar? "Take care of your health". What does that mean? In the Parkinson's community it is important to include exercise in your daily routine.

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682 Comments

Looking for Answers and Support?

Date: Jan 20, 2012

Here’s the scenario: You, your family member, friend or neighbor has Parkinson's Disease (PD). And, you wonder… “How will this disease affect me?” “Where should I turn for support?”

Where do you go to get information about PD? Do you search the internet, go to the library, the bookstore or ask a medical professional? Is ignorance bliss or is knowledge and education power?

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10809 Comments

Put one foot in front of the other

Date: Feb 06, 2012

Walking - we take for granted such an automatic task. Put one foot in front of the other. You stroll along at a brisk pace without taking a second thought to it. That is, until you have been diagnosed with Parkinson's disease.

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1079 Comments

Tips and Tricks for Living With Parkinson's

Date: Mar 15, 2012

*In this post are a few common ways to assist with writing, speaking, issues with freezing and taking medications. What has worked for you? Please respond on our blog with your favorite tips and tricks that help you get along each day with Parkinson’s.

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3465 Comments

Flanked by Angels

Date: Mar 19, 2012

Flanked by Angels

As I sit here remembering one of the best ski outings I have experienced in recent years, I decided to share my joy with others affected by Parkinson’s disease. The January Parkinson’s Association of the Rockies’ newsletter featured an upcoming Ski Program for people with Parkinson’s sponsored by the Breckenridge Outdoor Education Center (BOEC). ...

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1152 Comments

Share Your Story

Date: Apr 16, 2012

April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can let the public be aware about Parkinson's Disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefront.

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1827 Comments

Plan "B" for the Care Partner

Date: May 01, 2012

Care partners, care givers, care takers all mean the same thing. You experience life together. In good times and challenging times. In sickness and in health. Throw in the part about chronic illness. When one of you is diagnosed with Parkinson’s disease, you both live with it. Most care partners focus on the person with Parkinson's well-being before thinking of taking care of oneself.

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652 Comments
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